Tickets:
Film: $20
VIP (Film + After Party): $100
This is a third party event organized by EB Research Partnership. The content of this screening/event is the sole responsibility of the organizer.
Matter of Time is a compelling documentary that chronicles the global fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic skin disorder affecting children and adults worldwide.
Filmed against the backdrop of Eddie Vedder’s October 2023 solo benefit concerts in Seattle—held to raise critical funds for clinical research—the documentary skillfully blends the energy of live music with deeply personal stories from patients, families, researchers, and advocates.
Through intimate interviews and evocative concert footage, Matter of Time reveals how determination, community, and scientific innovation are converging to transform hope into tangible progress. Produced by Door Knocker Media in association with Vitalogy Foundation — and with score by Broken Social Scene — this film is more than a concert doc: it's a rallying cry for what’s possible when people unite against rare disease.
At the heart of the film’s mission is EB Research Partnership (EBRP), the nonprofit leading the charge against EB. Their pioneering “venture philanthropy” model invests strategic funding into the most promising research — accelerating treatments and pushing toward cures, not just for EB but for rare diseases broadly. (EB Research Partnership)
Join EB Research Partnership in Toronto for this special screening of Matter of Time—a final theatrical opportunity to experience this powerful story. All ticket proceeds support EBRP’s mission to end EB forever. This event is more than a movie night — it’s a chance to be part of a growing global movement. By attending, you’re helping unlock breakthroughs, amplifying patient voices, and fueling hope for thousands living with EB and other rare diseases.